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Diabetes and Your Child: Understanding Type 1 Diabetes

You’ve been told that your child has type 1 diabetes. This means their body has trouble using a sugar called glucose for energy. Diabetes is a lifelong condition. Left untreated, it can lead to serious health problems. But diabetes can be managed so your child can live a full, healthy life.

How the body gets energy

When your child eats, the digestive system breaks down food. Some of this food is turned into glucose in the intestine. Glucose (also called blood sugar) gives energy to the body’s cells. It travels through the blood to reach the cells. But glucose needs the help of a hormone called insulin to enter cells. Insulin is made by an organ called the pancreas. Insulin is released into the blood. It travels to the cells just like glucose. When insulin reaches a cell, it acts like a key. It opens a door into the cell so glucose can enter. 

Outline of child's abdomen showing stomach, pancreas, and intestine.

Closeup cross section of blood vessel near cells with insulin and glucose entering bloodstream. Insulin binds to cell. Glucose enters cell and is used for energy.

When your child has type 1 diabetes

In children with type 1 diabetes, the pancreas stops making insulin. Food is still broken down into glucose. And glucose still travels to the cells. But without insulin, glucose can’t enter the cells. Instead, it builds up in the blood. The liver puts more glucose out into the blood. Too much glucose in the blood is called hyperglycemia (high blood sugar). Without glucose, your child’s cells don’t get the energy they need. And over time, high blood sugar can cause other health problems.

Closeup cross section of blood vessel near cells showing Type 1 diabetes. Insulin not produced. Glucose can't enter cells and builds up in bloodstream. Cell has no glucose for energy.

What are the causes of type 1 diabetes?

The exact cause of type 1 diabetes isn't known. We do know that it’s not caused by eating too much sugar. Type 1 diabetes can run in families. Or your child may be the only person in the family to have type 1 diabetes. The important thing to remember is that it’s not your fault. Nothing you or your child did caused their diabetes.

What are the symptoms of type 1 diabetes?

When the pancreas stops making insulin, the body’s cells become starved for energy. This can make your child feel tired and rundown. Your child may feel or have:

  • Very strong thirst

  • Increased peeing

  • Blurry vision

  • Tiredness for no clear reason

  • Upset stomach (nausea), vomiting, and belly pain

  • Extreme hunger

  • Headaches

  • Flu-like symptoms

  • Bed wetting

  • Unexplained weight loss

  • Trouble focusing

How is type 1 diabetes diagnosed?

Simple blood tests can help the healthcare provider find out if your child has type 1 diabetes. These tests check for a high level of glucose in your child’s blood. Glucose tests may need to be repeated in order to confirm the diagnosis.

How is type 1 diabetes treated?

There's no cure for type 1 diabetes. But the good news is that the condition can be managed. Your child’s pancreas isn't making insulin. So insulin has to be put into your child’s body. But insulin can’t be taken as a pill. Instead, it's most often given as a shot (injection). The idea of giving your child shots might seem scary at first. But most parents and children find that it’s easier than they thought. Your child’s provider will teach you how to check your child’s blood sugar level. This tells you how much insulin to give your child to keep blood sugar in a healthy range.

What are the long-term concerns?

People with a blood sugar level that's too high over many years can develop health problems. These problems can affect the heart, eyes, kidneys, and nerves. You can help delay or prevent these problems in your child. To do this, manage your child’s blood sugar as directed. Support and role model a healthy lifestyle. And teach your child in an appropriate way how to manage their diabetes.

The honeymoon phase

After diagnosis, your child’s pancreas may still be making a little insulin on its own. This is called the honeymoon phase. At this time, your child’s blood sugar may be managed with very little insulin. The honeymoon phase may last months or even years. Because of this, you may think that your child’s diabetes has gone away or been cured. But this isn't the case. As time goes on, your child’s pancreas will stop being able to make any insulin at all. Talk to your child’s healthcare provider about managing your child’s blood sugar during the honeymoon phase.

Note

This sheet doesn't give all the information you need to care for your child with diabetes. Ask your child’s healthcare provider for more information.

How daily issues affect your health

Many things in your daily life impact your health. This can include transportation, money problems, housing, access to food, and child care. If you can’t get to medical appointments, you may not receive the care you need. When money is tight, it may be difficult to pay for medicines. And living far from a grocery store can make it hard to buy healthy food.

If you have concerns in any of these or other areas, talk with your healthcare team. They may know of local resources to assist you. Or they may have a staff person who can help.

Online Medical Reviewer: Callie Tayrien RN MSN
Online Medical Reviewer: Liora C Adler MD
Online Medical Reviewer: Raymond Kent Turley BSN MSN RN
Date Last Reviewed: 1/1/2022
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